2024 Discussions
(This series is approved for 1.5 hours of CME credit)
May 13: "UCEER: The Past and Future of Scholarship in Ethical, Legal, and Social Issues in Genetics"
April 11: "More Than Just a Number: Using Our Stories to Navigate Anti-Black Racism and Poor Health"
March 6: "Imagining Socially Just Policy Narratives About Dementia"
February 22: "The Arc of Hope: Existential Questions in Serious Illness"
Details
"UCEER: The Past and Future of Scholarship in Ethical, Legal, and Social Issues in Genetics"
Jeffrey Botkin, MD, MPH
Dr. Jeffrey Botkin, former Principal Investigator for the Utah Center for Excellence in ELSI Research, will discuss the history of the CEER program at the NIH and the genesis of the UCEER program at the University of Utah. He will provide an overview of the rationale for the focus of the UCEER on genetic screening and will summarize the impressive productivity of the UCEER scholars from a diverse set of disciplines. The presentation will prompt a discussion of what should come next to foster national dialogue and research on the ethical, legal, and social issues in genetics.
in collaboration with the Utah Center for Excellence in ELSI Research (UCEER)
2023-2024 COWAN MAYDEN LECTURE
"More Than Just a Number: Using Our Stories to Navigate Anti-Black Racism and Poor Health"
Keisha Ray, PhD
McGovern Center for Humanities & Ethics at UT Health Houston & Director of the Medical Humanities Scholarly Concentration co-sponsored with the Spencer S. Eccles Health Sciences Library (EHSL) &
in collaboration with the U of U Spencer Fox Eccles School of Medicine (SFESOM) - Department of Internal Medicine
"Imagining Socially Just Policy Narratives About Dementia"
Nancy Berlinger, PhD
Senior Research Scholar, The Hastings Center
This interactive talk will present work in progress on an NEH-funded Collaborative Research project, "The Meanings of Dementia: Interpreting Cultural Narratives of Aging Societies." It will focus on ways to bring creativity and encouragement to the task of real-world policymaking by imaging socially just policy narratives for America's aging society. Drawing on health humanities approaches, we will explore several prominent cultural narratives about dementia and consider how to intervene in narratives that do not lead to improved lives for people facing dementia and for dementia caregivers.
2023-2024 DAVID GREEN LECTURE
"The Arc of Hope: Existential Questions in Serious Illness"
Sabrina Derrington, MD, MA, HEC-C, FAAP
Senior Research Scholar, The Hastings Center
What is the role of hope in facing a serious illness or injury? What can we do when a patient or their family are holding onto hope that is totally unrealistic? Our conversation will explore the complexities of hope for patients, families, and healthcare providers, and consider moral obligations relevant to communication and decision-making.
BACKGROUND READINGS:
Reder, EAK and Serwint, JR. Until the Last Breath: Exploring the Concept of Hope for Parents and Health Care Professionals During a Child's Serious Illness. Arch Pediatr Adolesc Med. 2009;163(7):653–657. doi:10.1001/archpediatrics.2009.87
Silver, Anya Krugovoy.
I Watched You Disappear: Poems (Strawberries in Snow). Louisiana State University Press, 2014. Project MUSE, muse.jhu.edu/book/28553.