Reportable Conditions

In accordance with the National Cancer Institute SEER Program and the National Program of Cancer Registries guidelines, cases reportable to the registry follow the SEER Program Coding and Staging Manual.

For a summary of reportable conditions, see below. For detailed reportability requirements, refer to SEER Program Coding and Staging Manual. To access historical versions of staging and coding manuals for diagnosis years prior to the current year, please visit the SEER Website.

In situ and malignant/invasive histologies (Behavior code /2, /3, see ICD-O-3) are reportable including:

• Early or evolving melanoma, in situ and invasive: As of 01/01/2021, early or evolving melanoma in situ, or any other early or evolving melanoma, is reportable.
• All GIST tumors are reportable as of 01/01/2021.
• Nearly all thymomas are reportable as of 01/01/2021. The exceptions are:
  • Microscopic thymoma or thymoma, benign (8580/0)
  • Micronodular thymoma with lymphoid stroma (8580/1)
  • Ectopic hamartomatous thymoma (8587/0)
• Carcinoid, NOS of the appendix is reportable. As of 01/01/2015, the ICD-O-3 behavior code changed from /1 to /3.
• Intraepithelial neoplasia, grade III (examples: AIN III C210 & C211; VAIN III & VIN III)
• Lobular carcinoma in situ (LCIS) of breast
• Urine cytology positive for malignancy is reportable for diagnoses in 2013 and later (exception: When a subsequent biopsy of a urinary site is negative, do not report)
• Non-invasive mucinous cystic neoplasm (MCN) of the pancreas with high grade dysplasia
• Mature teratoma of the testes in adults is malignant and reportable as 9080/3

Benign/Non-Malignant Histologies:

• Benign and borderline primary intracranial and central nervous system (CNS) tumors with a behavior code /0 or /1) in ICD-O-3 (effective with cases diagnosed 01/01/2004 to 12/31/2020) or ICD-O-3.2 (effective with cases diagnosed 01/01/2021 and later). Refer to table in SEER Program Coding and Staging Manual.

Note:  Benign and borderline primary brain and nervous system tumors have been reportable per state reporting requirements since the inception of the Utah Cancer Registry in 1966.

• Pilocytic Juvenile astrocytoma is reportable and should be coded as 9421 with behavior /3 (9421/3)
• Neoplasms and tumor are reportable terms for intracranial and CNS because they are listed in ICD-O-3.2 with behavior codes of /0 and /1
  • "Mass" and "lesion" are not reportable terms for intracranial and CNS because they are not listed in ICD-O-3.2 with behavior codes of /0 or /1