Information for Registrars
Cancer is designated as a reportable disease in the state of Utah (Cancer Reporting Rule, R384-100).
Reporting Cancer Cases to the Utah Cancer Registry
Cancer registrars perform a critical function for the Utah Cancer Registry (UCR) in reporting cancer case information. We depend on the information submitted by registrars to be timely and high quality which enables us to consolidate cancer case contents and report to national standard setters.
This page will provide hospital-based cancer registrars with information about:
- data standards
- what to include in an abstract
- when abstracts are necessary
- reporting history of cancer only
- data edits
The Utah Cancer Registry (UCR) participates in the National Cancer Institutes's Surveillance, Epidemiology and End Results (SEER) program, in the Centers for Disease Control and Prevention's National Program of Cancer Registries (NPCR), and is a member of the North American Association of Central Cancer Registries (NAACCR). UCR must follow SEER, NPCR, UCR, and NAACCR requirements for reportable cases and data collection. Facilities, registrars, and vendors are encouraged to refer to the official data standards of SEER, NPCR, UCR, and NAACCR to ensure complete compliance.
What is reportable?
Detailed information about which conditions are reportable is available on the Reportable Conditions page.
ICD-10-CM casefinding lists should be used to screen prospective cases and identify cancer cases for inclusion in the registry.
What information to include in an abstract?
UCR collects SEER and NPCR reportable data items as well as Utah specific required Hereditary Breast and Ovarian Cancer (HBOC) data items.
- A complete list of data items required by UCR is available here
- Details and instructions for reporting HBOC data items are located here
When should abstracts be submitted?
Reportable cases are due to UCR within six months of the date of diagnosis or date first seen for the reportable condition. Please refer to Utah State Cancer Reporting Rule.
- Initial hospital case reports containing patient identifiers and key diagnostic variables should be submitted within six months of diagnosis
- Complete hospital case reports should be submitted no later than one year after the end of diagnosing year
When is an abstract not necessary?
An abstract is not required in the following situations:
- patients seen only in consultation to provide a second opinion or to confirm treatment plan
- patients with a ‘history’ of cancer only, not initially diagnosed at reporting facility and are not receiving cancer directed treatment at reporting facility
- patients admitted with active disease, not initially diagnosed, no part of initial workup at reporting facility, and are not receiving cancer directed treatment at the reporting facility
Reporting patients with a history of cancer only
For patients who are admitted with ONLY a ‘history’ of cancer, do not submit abstracts for these patients. Please submit a listing of these patients to UCR.
- This includes patients with a past history of cancer and patients with active disease who were not diagnosed, initially staged, or treated at the reporting facility.
- If the cancer was previously abstracted and reported from your facility, it is not necessary to include the patient/cancer on the list.
Please refer to the linked template for specific data items to include in the ‘history of’ list.
- To ensure completeness and accuracy of the required data items, UCR applies the latest version of data edits applicable to SEER, NPCR, and Utah-specific required variables on cases submitted to UCR. Submitted abstracts must pass edits before being accepted by UCR. UCR approved edit metafiles
- NAACCR references
Follow-upHospital facilities shall submit annual follow-up to UCR within 13 months of the date the patient was last contacted by facility personnel. Please refer to Utah State Cancer Reporting Rule.
UCR Inquiry Form for Utah Hospital Registrars
UCR has implemented a web based communication tool for requests from hospital based certified tumor registrars.
Please use this form to submit registry related questions to UCR which will be answered by UCR Certified Tumor Registrars. A selection of helpful questions and answers are posted on our Coding Questions and Answers page.
- National Cancer Registrars Association (NCRA)
- National Cancer Institute SEER Program (SEER)
- Centers for Disease Control and Prevention's National Program of Cancer Registries (NPCR)
- Utah Cancer Registry Hereditary Breast and Ovarian Cancer (HBOC)
- North American Association of Central Cancer Registries (NAACCR)
- NAACCR Data Dictionary
- SEER Program Coding & Staging Manuals
- 2018 Solid Tumor Rules
- Extent of Disease (EOD) 2018
- NAACCR Site-Specific Data Items (SSDI)
- Summary Stage 2018
- SEER Registrar Staging Assistant (SEER*RSA)
- ICD-0-3 Guidelines
- SEER COVID-19 Abstraction Guidance
If you have any additional questions, please contact Utah Cancer Registry at firstname.lastname@example.org, or telephone