Resources for Registrars: Utah-Specific Data Items

Hereditary Breast and Ovarian Cancer (HBOC)

The Utah Department of Health added six new required data items for breast and ovarian cancer case reports to the Utah Cancer Registry from all facilities effective January 1st, 2019. Collecting these data items allows for statewide surveillance of genetic counseling and testing as related to Hereditary Breast and Ovarian Cancer (HBOC). There are many public health and research uses for these data. The Utah Department of Health specifically proposed these items to fill surveillance gaps regarding cancer genetic services in order to inform statewide programmatic public health efforts aimed at reducing the burden of morbidity and mortality related to HBOC. The addition of these data items has been approved by the Utah Cancer Registry’s Advisory Research Committee

HBOC Resources

HBOC Required State-Specific Data Items

Updates: Effective for cases diagnosed 1/1/2022 forward

Prior version: Effective for cases diagnosed 1/1/2019-12/31/2021

HBOC Coding Guidelines

Updates: Effective for cases diagnosed 1/1/2022 forward

Prior Version: Effective for cases diagnosed 1/1/2019-12/31/2021

HBOC Training

Contact Us

Utah Cancer Registry

250 East 200 South, Suite 1375
Salt Lake City, UT 84111

Phone: 801-581-8407
Fax: 801-581-4560
Email: ucr.info@hsc.utah.edu