The Pedigree and Population Resource (PPR) provides access to a limited amount of data from the UPDB through a UPDB Limited Query Tool. This web-based query tool may be used by investigators for pre-research or preliminary studies. The query tool will return de-identified, summary results. These results may be used to provide preparatory information for research projects and grant applications, such as selecting a cohort of individuals for analysis. You do not need an IRB to use this query tool; however, results may not be published (without permission).
This tool is available to individuals associated with institutions of higher learning or non-profit health organizations who intend to conduct research. When you access the query tool, you will be requested to register and complete a data use agreement.
UPDB Limited was designed at the Huntsman Cancer Institute by the Pedigree Population Resource and the Research Informatics Resource.