Externally Linked Records
University of Utah Health Sciences Center
Beginning in 2003, a new research tool was created for investigators studying the familiality of disease: a link between the medical information contained in the University of Utah Health Sciences Center (UUHSC) Data Resource Center and the family history information in the UPDB.
- The UUHSC Data Resource Center maintains a data warehouse with medical information on all patients since mid-1990s.
- Neither the patient demographic records nor the medical information from the UUHSC are incorporated into the UPDB; each resource maintains its own data.
- The medical data and UPDB records can be accessed at the time that a research-specific project has been approved. Access to the link file is limited to research only and is governed by the Resource for Genetic and Epidemiologic Research (RGE).
Intermountain Healthcare
Intermountain Healthcare is a not-for-profit health care delivery system of hospitals, clinics, and employed physician groups covering Utah and southeastern Idaho. Several of the small hospital and clinics are the only source of care in some rural Utah communities.
- Intermountain Healthcare maintains a data warehouse with medical information on all patients since 1992.
- Neither the patient demographic records nor the medical information from Intermountain Healthcare are incorporated into the UPDB; each resource maintains its own data.
- The medical data and UPDB records can be accessed at the time that a research-specific project has been approved. Access to the link file is limited to research only and is governed by the Resource for Genetic and Epidemiologic Research (RGE) and the Intermountain IRB.