UPDB - Externally Linked Records

University of Utah Health Links

Beginning in 2003, a new research tool was created for investigators studying the familiality of disease: a link between the medical information contained in the University of Utah Health Links and the family history information in the UPDB.

• The University of Utah Health maintains a data warehouse with medical information on all patients since mid-1990s.
• Neither the patient demographic records nor the medical information from University of Utah Health are incorporated into the UPDB; each resource maintains its own data.
• The medical data from University of Utah Health and UPDB records can be accessed at the time that a research-specific project has been approved. Access to the link file is limited to research only and is governed by the Resource for Genetic and Epidemiologic Research (RGE).

Intermountain Healthcare

Intermountain Healthcare is a not-for-profit health care delivery system of hospitals, clinics, and employed physician groups covering Utah and southeastern Idaho. Several of the small hospital and clinics are the only source of care in some rural Utah communities.

• Intermountain Healthcare maintains a data warehouse with medical information on all patients since 1992.
• Neither the patient demographic records nor the medical information from Intermountain Healthcare are incorporated into the UPDB; each resource maintains its own data.
• The medical data from Intermountain Health and UPDB records can be accessed at the time that a research-specific project has been approved. Access to the link file is limited to research only and is governed by the Resource for Genetic and Epidemiologic Research (RGE) and the Intermountain Healthcare IRB.

Additional Resources

• Centers for Medicare and Medicaid Services (CMS)
• Utah Department of Health and Human Services (DHHS)