View all Kaphingst KA publications in the NIH PubMed Database
Selected Publications:
Lachance CR, Erby LAH, Ford BM, Allen Jr VC, Kaphingst KA. Informational content, literacy demands, and usability of websites offering health-related genetic tests directly to consumers. Genetics in Medicine 2010; 12(5): 304-312. [PMCID: PMC2997043] https://www.nature.com/articles/gim201050
Kaphingst KA, McBride CM, Wade C, Alford SH, Brody LC, Baxevanis AD. Consumers’ use of web-based information and their decisions about multiplex genetic susceptibility testing. Journal of Medical Internet Research 2010; 12(3):e41. [PMCID: PMC2956320] https://www.jmir.org/2010/3/e41
Lea DH, Kaphingst KA, Bowen D, Lipkus I, Hadley DW. Communicating genetic information and genetic risk: Health literacy and numeracy considerations. Public Health Genomics 2011; 14(4-5):279-289. [PMCID:PMC2909377] https://www.karger.com/Article/FullText/294191
Kaphingst KA, McBride CM, Wade C, Alford SH, Reid R, Larson E, Baxevanis AD, Brody LC. Patients’ understanding of and responses to multiplex genetic susceptibility test results. Genetics in Medicine 2012; 14 (7):681-687. [PMCID: PMC3417078] https://www.nature.com/articles/gim201222
Kaphingst KA, Facio FM, Cheng M, Brooks S, Eidem H, Linn A, Biesecker BB, Biesecker LG. Effects of informed consent for individual genomic sequencing on relevant knowledge. Clinical Genetics 2012; 82(5):408-415. [PMCID:PMC3469729] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3469729/
Hurle B, Citrin T, Jenkins JF, Kaphingst KA, Lamb N, Roseman JE, Bonham VL. What does it mean to be genomically literate? National Human Genome Research Institute meeting report. Genetics in Medicine 2013; 15:658-663. [PMCID: PMC4115323] https://www.nature.com/articles/gim201314
Kaphingst KA, Stafford JD, McGowan LD, Seo J, Lachance CR, Goodman MS. Effects of racial and ethnic group and health literacy on responses to genomic risk information in a medically underserved population. Health Psychology 2015; 34(2):101-110. [PMCID: PMC4856065] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4856065/
Thompson T, Seo J, Griffith J, Baxter M, James A, Kaphingst KA. The context of collecting family health history: Examining definitions of family and family communication about health among African American women. Journal of Health Communication 2015; 20(4): 416-423. [PMCID: PMC4385429] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4385429/
Kaphingst KA, Ivanovich J, Biesecker BB, Dresser R, Seo J, Dressler LG, Goodfellow PJ, Goodman MS. Preferences for return of incidental findings from genome sequencing among women diagnosed with breast cancer at a young age. Clinical Genetics 2016; 89(3):378-384. [PMCID: PMC4856148] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4856148/
Kaphingst KA, Blanchard M, Milam L, Pokharel M, Elrick A, Goodman MS. Relationships between health literacy and genomics-related knowledge, self-efficacy, perceived importance, and communication in a medically underserved population. Journal of Health Communication 2016; 21:58-68. [PMCID: PMC5546792] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5546792/
Elrick A, Ashida S, Ivanovich J, Lyons S, Biesecker BB, Goodman MS, Kaphingst KA. Psychosocial and clinical factors associated with family communication of cancer genetic test results among women diagnosed with breast cancer at a young age. Journal of Genetic Counseling 2017; 26(1):173-181. [PMCID: PMC5239754] https://onlinelibrary.wiley.com/doi/pdfdirect/10.1007/s10897-016-9995-0
Drake BF, Brown KM, Gehlert S, Wolf LE, Seo J, Perkins H, Goodman MS, Kaphingst KA. Development of plain language supplemental materials for the biobank informed consent process. Journal of Cancer Education 2017; 32:836-844. [PMCID: PMC5047847] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5047847/
Kaphingst KA, Ivanovich J, Lyons S, Biesecker B, Dresser R, Elrick A, Matsen C, Goodman M. Preferences for learning different types of genome sequencing results among young breast cancer patients: role of psychological and clinical factors. Translational Behavioral Medicine 2018; 8(1):71-79. [PMCID: PMC6065546] https://academic.oup.com/tbm/article/8/1/71/4829333
Peterson E, Chou WS, Gaysynsky A, Krakow M, Elrick A, Khoury M, Kaphingst KA. Communication of cancer-related genetic and genomic information: a landscape analysis of reviews. Translational Behavioral Medicine 2018; 8(1):59-70. [PMCID:PMC6065548] https://academic.oup.com/tbm/article/8/1/59/4829343?login=true
Petersen J, Koptiuch C, Wu YP, Mooney R, Elrick A, Szczotka K, Keener M, Pappas L, Kanth P, Soisson A, Kohlmann W, Kaphingst KA. Patterns of family communication and preferred resources for sharing information among families with Lynch syndrome diagnosis. Patient Education and Counseling 2018; 101:2011-2017. [PMCID:PMC6179927] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6179927/
Kaphingst KA, Peterson E, Zhao J, Gaysynsky A, Elrick A, Hong SJ, Krakow M, Pokharel M, Ratcliff CL, Klein WMP, Khoury MJ, Chou, W-YS. Cancer communication research in the era of genomics and precision medicine: a scoping review. Genetics in Medicine 2019; 21:1691-1698. [PMCID:PMC7725534] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7725534/
Pokharel M, Elrick A, Canary HE, Clayton MF, Sukovic M, Champine M, Hong SJ, Kaphingst KA. Health communication roles in Latino, Pacific Islander, and Caucasian families: a qualitative investigation. Journal of Genetic Counseling 2020; 29(3):399-409. https://onlinelibrary.wiley.com/doi/abs/10.1002/jgc4.1177
Kaphingst K, Khan E, White KM, Sussman A, Guest D, Schofield E, Dailey YT, Robers E, Schwartz MR, Li Y, Buller D, Hunley K, Berwick M, Hay JL. Effects of health literacy, educational attainment, and level of melanoma risk on responses to personalized genomic testing. Patient Education and Counseling 2021;104(1):12-19. [PMCID:PMC7749822] https://www.sciencedirect.com/science/article/abs/pii/S073839912030392X
Albrechtsen R, Goodman M, Bather JR, Kaphingst K. Impact of numeracy preferences on information needs for genome sequencing results. Patient Education and Counseling, in press. [PMCID:PMC7965229] https://www.sciencedirect.com/science/article/abs/pii/S0738399120305309
Nick H, Kehoe K, Gammon A, Contreras JL, Kaphingst KA. Researcher knowledge, attitudes, and communication practices for genomic data sharing. Journal of Empirical Research on Human Research Ethics, in press. https://journals.sagepub.com/doi/abs/10.1177/1556264620969301
Chavez-Yenter D, Chou, W-YS, Kaphingst KA. State of the recent literature on communication about cancer genetic testing among Latinx populations. Journal of Genetic Counseling 2021;30(3):911-918. https://onlinelibrary.wiley.com/doi/abs/10.1002/jgc4.1351
Koptiuch C, Espinel WF, Kohlmann WK, Zhao J, Kaphingst KA. Implications of multigene panel testing on psychosocial outcomes: a comparison of pancreatic and breast/ovarian cancer patients. JCO Precision Oncology, 2021. https://ascopubs.org/doi/pdfdirect/10.1200/PO.20.00199
Kaphingst KA, Kohlmann K, Chambers RL, Goodman MS, Bradshaw R, Chan PA, Chavez-Yenter D, Colonna SV, Espinel WF, Everett JN, Gammon A, Goldberg ER, Gonzalez J, Hagerty KJ, Hess R, Kehoe K, Kessler C, Kimball KE, Loomis S, Martinez TR, Monahan R, Schiffman JD, Temares D, Tobik K, Wetter DW, Mann DM, Kawamoto K, Del Fiol G, Buys SS, Ginsburg O, BRIDGE research team. Comparing models of delivery for cancer genetics services among patients receiving primary care who meet criteria for genetic evaluation in two healthcare systems: BRIDGE randomized controlled trial. BMC Health Services Research 2021;21:542. [PMCID:PMC8170651] https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-021-06489-y
Ratcliff CL, Wong B, Jensen JD, Kaphingst KA. The impact of communicating uncertainty on public responses to precision medicine research. Annals of Behavioral Medicine, in press. https://academic.oup.com/abm/advance-article-abstract/doi/10.1093/abm/kaab050/6326654?redirectedFrom=fulltext
Chavez-Yenter D, Zhao J, Ratcliff CL, Kehoe K, Blumling A, Peterson E, Klein WM, Chou WS, Kaphingst KA. Theory utilization in current communication of cancer genetic testing research: identified gaps and opportunities. Social Science & Medicine, in press. https://www.sciencedirect.com/science/article/abs/pii/S0277953621004767