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Kaphingst Lab - Previvors and Social Media Study

Creation of social media by BRCA previvors
UCEER pilot award
2021-2022

Study Aims

  1. Investigate the reasons why individuals share aspects of their previvorship identity and experience on social media platforms.
  2. Analyze how presenting previvorship on social media aids previvors in finding social support, building knowledge, and making decisions about their health.

Study Team

Mariah Wellman

Mariah Wellman

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Hannah Mundinger

Academic Office Information

hlmundinger@gmail.com

Hannah Mundinger is a third-year undergraduate student at the University of Utah majoring in Psychology and Health, Society, and Policy with a minor in Anthropology.  Her research interests center on the social and structural mechanisms that augment or hinder communication in the context of rare diseases. She is currently working under the guidance of Professor Kaphingst and Mariah Wellman on how social media creation influences identity in relation to genetic disorders.  

Collaborators

Whitney Espinel, CGC, MS

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Cindy Matsen, MD

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Principal Investigator

Kimberly Kaphingst, ScD

Principal Investigator