Funded Grant Projects
The Effect of Electronic Informed Consent Information (EICI) on Residual Newborn Specimen Research
Improved Prenatal Genetic Screening Decision Making through Interactive Technology, Rothwell PI.
Francis: National Science Foundation, Law & Social Sciences Program
Postdoctoral fellowship to study legal issues facing adults with autism ($200,000; 2013–2015)
Parental Education and Choice about Newborn Screening and Bloodspot Retention Description: This project will design and evaluate new educational tools for parents regarding newborn screening
NIH R01 HD069045-01 (Swoboda, PI) 4/2011–4/2016
Pilot newborn screening project for identification and prospective follow-up of infants with spinal muscular atrophy Description: The project will design and implement a pilot study of SMA newborn screening, including an assessment of ethical, regulatory, and psychosocial issues