Academics & Research

UCEER

GURU

"Nothing about us without us"

Research on genetic science and genetic medicine has historically left out the voices of the disability community. This is unacceptable. For decades, members of the disability community have demanded "nothing about us without us"--that conversations about disability, policy decisions affecting people with disabilities, and technological developments impacting the lives of disabled people should include members of the disability community, so that they can bring their lived experiences with disability to the table.   

GURU: Graduate and Undergraduate Researchers of UCEER

Graduate and Undergraduate Researchers of UCEER (GURU) is an NIH-funded, first-of-its-kind program designed to give undergraduate and graduate students at the University of Utah who identify as having a disability the opportunity to join a research team focused on the ethical, legal, and social issues raised by genomic science and genomic medicine. The ultimate goal is to provide students with a combination of mentorship, research, and curricular resources that will maximize their potential for moving on to the next stage of their academic or professional career.

 

Resources for GURU Participants

Undergraduate student participants in GURU will receive the following support:
  • Paired with a faculty researcher and paid $10/hour (for up to 150 hours/semester)
  • Provided $1220/year to support travel to an academic conference
  • Placed in a mentorship network with multiple mentors, at least one of whom will be a faculty member who identifies as having a disability
  • Offered the opportunity to take courses focusing on the ethical, legal, and social implications of genomic science and genomic medicine
  • Provided resources to take a GRE test-prep course

Graduate student participants in GURU will receive the following support:
  • Supported with a Graduate Research Assistant stipend of $19,500 (for a 20 hours/week commitment).
  • Supported with a Tuition Benefit Program that covers 100% of eligible tuitions and fees (for additional information, see: https://gradschool.utah.edu/tbp/)
  • Provided $2440/year to support travel to academic conferences
  • Provided $2500/year to support own research
  • Placed in a mentorship network with multiple mentors, at least one of whom will be a faculty member who identifies as having a disability
  • Offered the opportunity to take course focusing on the ethical, legal, and social implications of genomic science and genomic medicine
  • Provided resources to take a grant-writing workshop
 

UCEER Projects to Join

  • A study of how parents who learn they will have a child with Down syndrome convey that news to family and friends.
  • The development of a comic book to enhance literacy about genetic testing.
  • The application of techniques from theater to assist doctors with communicating difficult news.
  • Current Pilot Projects

 

Apply (application deadline: January 11, 2019)

GURU Flyer for Undergraduate Students

GURU Flyer for Graduate Students